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Running across the USA for Cystic Fibrosis

Thursday 09.27.2012 , Posted by
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Tommy Danger is off on a new adventure for a cause that’s felt a bit close to home. Rather than raise support for orphanages and schools in developing countries this time, Tommy is running across the United States to raise funds for Cystic Fibrosis. His running journey just commenced three days ago in Seattle, Washington.

Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). Tommy’s good friend’s son, Ethan, was diagnosed with Cystic Fibrosis a few years ago. Living in a country that does not give government support to those who suffer from the disease, many depend on the Cystic Fibrosis Foundation to help when it is needed the most. Upon seeing the difficulty Ethan has just being an average kid, Tommy felt inspired to do something.

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Tommy will run from Seattle to Daytona Beach averaging about 15 miles a day for the next 7 months. If you would like to follow Tommy on his journey, he has a Facebook and Twitter page, and is doing daily videos on Youtube. He is also an active Couchsurfer and if you are located in the path Tommy is taking, you can host him for a night or sponsor him for a meal. You can find out more about the project on the official website, More Than Just Miles.

Looking for more ways to help with this cause? You can donate to the Cystic Fibrosis Foundation here.

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Shawn Saleme

Written by Shawn Saleme



Shawn Saleme is a full time writer for Visual News. Having traveled to over 45 countries, his international escapades continue to influence his writing and perspective. When not in a foreign territory, he makes his home in his native San Francisco Bay Area. Become friends with him on Facebook and invite him to share drinks and stories with you.

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Comments

  1. Mr. Danger,

    I have to say I had never heard about you until just a few days ago when my cousin Amanda in Crossville, Tennessee, contacted me to let me know she was trying to raise money to get her nephew and my little 2nd cousin Sam out to Florida to meet you as you cross the finish line.

    I am ashamed to say that with a family as large as mine and with age spreads across generations it hasn’t been a major priority for the entire family to stay in touch. Regretfully I didn’t even know about my youngest 1st cousin Mindy’s little boy living with cystic-fibrosis.

    My background is in fund raising, which Amanda did not know but as soon as I became aware of what the need was I got on it like white on rice.

    In the process I am able to help my cousin and her entire family in this issue and it is also our plan to change the financial situation of her family within my business.

    Like many Americans who face a chronic illness they are often times forced to live in a state of poverty in order to receive the medical attention and medications they need.

    Sam and family is no exception. Sam’s newest medication cost $330,000.00 a year. This is just one medication and does not account for any medications he needs to take in times of illness.

    His mother Mindy explained to me that it is she and her husbands desire to be able to take this kid wherever he wants…acknowledging that all of us have an expiration date, little Sam’s is likely much more certain and sooner than most of ours. Her words,” he’s a great kid, and if he wants to go to Africa to see a lion, we want to get him to Africa to see a lion…” Well I am setting them on a journey with my CEO Mr. Jay Noland, his healthy coffee company SereniGy Global and two other families in Denver, Colorado to change their lives with something as simple as a healthy cup of coffee.

    My CEO and you both seem to share a common passion, helping kids. Before Mr. Noland even opened the door so f his company he attached SereniGy to an orphanage out in Kissi, Africa and established SereniGy Kids Foundation. You can see the video here:
    http://serenigykids.org/index.php?option=com_content&view=article&id=82&Itemid=479

    I wanted to take the time to extend my thank you to you for doing what you are doing and giving this little man Sam something to dream about!.. Huge Hope and huge excitement. I am very grateful to you and I too hope I get to meet you one day to express my gratitude to you personally!.

    Thank you for your time and for you amazing ACTION! and thank you for the inspiration you have given to a nine year old little boy.

    With my deepest Respect,,

    Brian Redfern
    San Diego, California

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